MightyMaje.de is an initiative to promote research into muscle diseases, especially laminopathies. Muscle diseases are progressive and so far not curable. Often the disease manifests itself in early childhood, because the affected children are very weak and, for example, cannot hold their head alone and cannot crawl. Over time, the heart and lungs can also be affected. Now there is hope to stop this progressive disease!
The great research team of Prof. Dr. Spuler from Berlin has set itself the goal of developing a therapy to offer Maje and other affected people a better life perspective. The beginning has been made. Help us to push the project further and to be able to finance it also in 2021.
February 2021 News!!!
The first step in the direction of gentherapy has succeeded!!! Of course, first in the lab and not yet applicable to humans (more on this in the BLOG).
Thanks to your generous donations we can finance another step of the project! For this we thank all supporters from the bottom of our hearts!
The research has not yet reached its goal.
In order for the project to be successful, the research team at the Max Delbrück Center needs approximately 110,000 euros per year.
In order to achieve our goal of offering Maje and all affected children a better perspective on life, we need your support.
Please donate 💕
Medical research is important. (Super-) vital! For all of us!