Everyday Heroes
These are just a few faces of children with the same diagnosis as Maje. Children from all countries of the world, whose lives and daily routine depend on the circumstances and knowledge of the adults around them; more than healthy children. Actually, there are many more children than the internet and social media can show. Because many children with muscle disease have no or limited access to medical help. Often parents don’t even know why the child can’t walk, why he is too weak to stand or sit. Why his condition is getting worse and how they can help their child. That’s why this post goes out to all the CMD families of the world.
Big News from the Charité
Dear supporters of Maje,
we wish you a happy new year 2021! Better than the last one and above all with more TOGEHTER and less hurdles!
We start optimistically into the new year, because since last week we know that there are first indications of a gene correction on Maje’s cells in the Berlin research laboratory of the Charité! ????????
Donations support important research step
We can proudly announce that a part of the donations received can support another important research work in the group of Prof. Dr. Spuler.
At the Charité in Berlin
In July we were allowed to visit the wonderful team around Prof. Dr. Spuler in Berlin and get an insight into their work with muscle cells. The team is working hard to develop a therapy for muscle diseases.
